The following resources are provided as additional references. If you or your child has been recently diagnosed with Mitochondrial Disease, we know that wading through everything that is out there in order to learn more is difficult (we went through it ourselves).
The United Mitochondrial Disease Foundation – Mission: To promote research and education for the diagnosis, treatment, and cure of mitochondrial disorders and to provide support to affected individuals and families.
MitoAction – Mission: to improve the quality of life for children, adults, and families living with mitochondrial disease through support, education, outreach, advocacy, and clinical research initiatives. MitoAction’s vision is to create a community of support that reaches every child, adult, and caregiver affected by a mitochondrial disease.
Children’s Hospital of Philadelphia – The Mitochondrial Medicine Center strives for the integration of multi-disciplinary clinical care and translational research for patients of all ages living with mitochondrial disease.
The mission of the Center for Mitochondrial & Epigenomic Medicine (CMEM) is to unite the biomedical scientists, clinicians, and patients and their families within The Children’s Hospital of Philadelphia and The Perelman School of Medicine at the University of Pennsylvania to determine the causes and generate the cures for metabolic and degenerative diseases, cancer, and aging.
Mitochondrial Disease News is committed to finding and reporting on the latest science and research news related to this rare, debilitating, and often deadly disease.
The Australian Mitochondrial Disease Foundataion was also founded by parents of children suffering from mito. The site is based in Sydney, with the mission of supporting the mito community whilst seeking a cure.
International Mito Patients is a network of national patient organizations involved in mitochondrial disease. IMP’s mission is to increase quality of life for people with Mitochondrial Disease by facilitating cross-border cooperation and collaboration among national patients’ organizations.